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This corrects the article: “Ioannou A. Evolution of Disease-modifying Therapy for Transthyretin Cardiac Amyloidosis. Heart International. 2024;18(1):30-37”. Two typography errors were included incorrectly due to an editorial error. In Table 1, “eplontersen” was incorrectly written as “eplomtersen”. This has been corrected in the text. In the section “Eplontersen”, the administration schedule should be written as […]

Lisa Sarfaty: Help support Rare Disease Day

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Published Online: Feb 28th 2023

Our society partner, NORD (The National Organization for Rare Disorder) has planned several initiatives to support this year’s Rare Disease Day on 28 February. 

These activities are aimed at raising awareness about rare diseases and the challenges faced by people living with these conditions.  In this video, Lisa Sarfaty, NORD’s VP of Communication and Engagement, shares more details about these plans and importantly information on how you could get involved to help spread the message and bring more supporters to the cause.

Questions 

  1. The 28th February is Rare Disease Day, how is NORD supporting the day this year? (0:16)
  2. How could people get involved in supporting Rare Disease Day? (1:58)

Disclosures: Lisa Sarfaty has nothing to disclose in relation to this video interview.

Support: Interview and filming supported by Touch Medical Media Ltd. Interview conducted by Gina Furnival.

rarediseaseday.org

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